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LIFE WITH DOWN SYNDROME

Dedicated to our daughter

We are a British family, raising positive awareness of how great a life with Down Syndrome really is!

We hope to offer reassurance to anyone who has had a recent diagnosis and is wondering what the future may look like. We want to fill in the blanks for anyone who is curious about what family life looks like with additional needs (spoiler alert: still full of love and laughs). We are open to questions and conversations around Down Syndrome, so that the world is a more understanding and accepting place for our beautiful daughter and all others in #theluckyfew club to grow up in. 

Home: Welcome

Oriana at School

An update on the type of school setting we went for, how we made our decision, and how Oriana is finding it all.

Adenoids & Tonsils

Down syndrome related information on Oriana having her tonsils & adenoids out... from the symptoms to the operation, and recovery.

Buffer & Bridge

An honest and vulnerable post about some of the harder days of additional needs parenting.

2022

What did this year look like for a 4 year old with Down Syndrome?

Modelling for... Zara!!

Oriana had the opportunity to model for Zara Kids, A/W 2022. This post explains how she got into modelling, and what it can involve.

Post-Birthday! Oriana's health now..

Following on from our Diagnosis Story, this post describes Oriana's health and development since.

Our Diagnosis Story

How and when we found out that Oriana had Down syndrome, as well as how we navigated those very early days.

A Day In The Life of Oriana

Celebrating Down Syndrome Awareness month with a video of Oriana's weekend; helping you see what life with a pre-schooler with DS looks like

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CONTACT

For more information, or any questions, feel free to get in touch.

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