LIFE WITH DOWN SYNDROME

A post offering encouragement, and discussing the challenges of the 1st year of parenting a baby with Down Syndrome.

Are you pregnant, or hoping to be in the future? Do you already know if you are going to go ahead with the screening?

An update on the type of school setting we went for, how we made our decision, and how Oriana is finding it all.

Down syndrome related information on Oriana having her tonsils & adenoids out... from the symptoms to the operation, and recovery.

An honest and vulnerable post about some of the harder days of additional needs parenting.

What did this year look like for a 4 year old with Down Syndrome?

Oriana had the opportunity to model for Zara Kids, A/W 2022. This post explains how she got into modelling, and what it can involve.

Celebrating World Down Syndrome Day 2022 with some interesting facts and information on all things DS.

How do you value life? What do you think of when you think of a life well lived? Now let's talk about that in terms of ableism too...

The difference between Signing (BSL) & Makaton, how & why we started using it, how you can use it, & a video with some basic signs.

This is a common question, and a common misunderstanding too! Read this post to understand why there is no DS 'spectrum'.

A (very!) basic explanation of the different types of Down Syndrome.

A short video showing what life for a pre-schooler with Down syndrome looks like, when preparing to celebrate Christmas!

An overview of the discriminatory UK law surrounding late term abortions for babies with disabilities, plus ways you can support a change.

Following on from our Diagnosis Story, this post describes Oriana's health and development since.

How and when we found out that Oriana had Down syndrome, as well as how we navigated those very early days.

Celebrating Down Syndrome Awareness month with a video of Oriana's weekend; helping you see what life with a pre-schooler with DS looks like